It is with deep sadness that we share the passing of John Hudson, who died on April 19 at the age of 23. His loss is felt profoundly by all who knew him, and especially by those who had the privilege of walking alongside him throughout his life.
John lived with Epidermolysis Bullosa, a rare and painful genetic condition often referred to as “butterfly skin.” Despite the daily challenges it presented, he faced life with remarkable strength, resilience, and courage. For nine years, he worked closely with a friend and advocate to share his story, raising awareness and offering insight into the realities of living with this condition. Through this work, John became a powerful voice for others, inspiring many with his honesty and determination.
Beyond his advocacy, John will be remembered for his character. He possessed a rare combination of humor, kindness, sincerity, and quiet strength. Those who knew him speak of his ability to bring light into difficult moments, his genuine care for others, and his unwavering spirit. His presence left a lasting impression, and his influence extended far beyond his immediate circle.
John’s life, though far too short, was one of meaning and impact. He showed what it means to face adversity with grace and to live with purpose despite hardship. His story will continue to inspire and educate, and his memory will remain a source of strength for many.
A tribute video has been created in his honor, offering a glimpse into his journey and the life he shared with those around him.
We extend our heartfelt condolences to John’s family, friends, and all who were touched by his life. He will be remembered with deep respect, gratitude, and lasting admiration.
